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The posts below are not meant to be recommendations or a substitute for professional advice and services rendered by qualified doctors, allied medical personnel, and other professional services. The responsibility for any use of this information, or for proper medical treatment, rests with you.
Dec 18, 2015, 3:38 AM
As the year comes to an end in the midst of the hustle and bustle of the Holiday season, I decided to take a few moments to share some thoughts with the general rare disease community about facing a life more complex than others.