Request a Patient Teacher from Registry

Thank you for your interest in this service. The Patient-Teacher Registry is maintained by generous donations and grants from supporters. You may wish to make a donation through our Contributions page, or please let us know if you believe your institution would be interested in becoming a supporter of this service.

Please fill out and submit the following Patient-Teacher Request form if you are an educator. To the right side of this page is information on what you may expect once you make your request.

Disease Class

Please select the disease class of a Patient-Teacher

Disease Class Required

Diagnosis, if known

If known, please select the diagnosis of a Patient-Teacher

Diagnosis of Patient-Teacher

Date of event

City of event

State of event

Travel covered?

Educator's full name Required

Educator's email Required

Educator's direct phone number

Educator's academic affilation

Educator's academic title

Today's date

Americas/New York

Once you submit a request:

VMP will contact you within 1 week if there are questions about your request.
VMP will contact up to two Patient-Teachers with the requested diagnosis and notify him/her/them about the request.
VMP will contact you within 1 - 3 weeks with a response to your request.
If the Patient-Teacher is agreeable to the request, he/she/they will contact you directly or VMP will make the introduction.
VMP will follow up after the engagement to ask about the event.

Please note, only one VMP Patient-Teacher is contacted at a time. Only if the first request is not available is the second VMP Patient-Teacher contacted.

Your comments are welcome. VMP takes seriously the feedback coming from our colleagues and collaborators.

If you have questions, or for more information about the VMP Patient-Teacher Registry, please send a message through our Contact page.

Testimonial:

I first learned of the Patient-Teacher Registry through the Organic Acidemia Association website. I was looking for materials to enhance my Inherited Metabolic Disorders course, and I was thrilled to discover such an innovative option. Soon thereafter, I reached out for more information.

Process: The whole experience of securing a patient-teacher was superb! From our initial conversation to finding the speakers to the actual class session, the process was quick and seamless. Only days after my initial inquiry, I heard from an interested patient-teacher.

Class Session: Genuinely, the session was the best, most rewarding class experience I’ve been part of. I am so grateful that the patient-teachers joined us, and my students absolutely loved it. The presentation was interactive, open and engaging, and my students were able to connect with the disorder and patient/family experience, far beyond what they already learned through textbooks and published medical literature. No doubt, this unique experience will stay with them for many years to come.

Undergraduate Program Director

University Associate Professor