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"I thoroughly enjoyed the presentation by Dr. Korson and the porphyria patient. She told a compelling story about her diagnostic odyssey and life after her diagnosis. This was a worthy prelude to Rare Disease Day."
"Hearing from people who are directly affected by genetic disease, of the day-in and day-out situations they face, the hurdles they've overcome or how they've gone about managing symptoms gives us an important perspective that makes us more effective health care professionals."